This is for my friends with Syringomyelia and Chronic pain solidarity sucks.
It has not happened in a while but today BAM! it happened. I woke up head to toe pain.
Its complete lack of spoons day. Which is only alleviated by numerous hot showers, drugs, and sleep.
The reason I am doing a blog post about this is because while most of my friends completely understand my Syringomyelia and its plague beast of associated conditions, there are some who are skeptical.
So I wanted to write on a day where I was in pain. mind erasing, not doing anything, *dog can poop on the floor because f*ck you stairs* type pain.
Last night I went to sleep at 11AM. Normal time for me. Took my medicine, my supplements, my vitamin, and had my night shower to relax my muscles.
Woke up this morning opened my eyes and first thing I thought was "My head feels like someone put on a heavy metal crown and cinched it to death around my skull"
I immediately tried to eat a graham cracker to take some tramadol and ibuprophen. Then threw it up. Then waited for a few hours tried again, threw up. If hubby was home he would bring out the shop vac so it was easier for him to clean up when I miss the toilet completely.
Finally I managed to take some liquid benadryl, ate a graham cracker, kept it down (HUZZAH!) and ate some naproxen and tramadol and kept that down (HOORAY!)
So I am finally on my feet.
Breakfast! Shuffle to fridge pick up yogurt, drop it, pick it up again, drop it, pick it up with both hands cradle it to counter, can't peel back the lid. (GRRRRR!)
Finally I get frustrated and remember the graham crackers are open (YAY sustenance!) So after a filling breakfast of crackers and water (tap not rain) I try to take the dog out.
I lean over, I get dizzy, I stand up, I get dizzy, finally I sit on the couch, and manage to coax the dog over and clip him to the leash.
We slowly walk down the stairs, go outside, do our business, I nearly fall over when scooping his dirty sinful business but Kayne knows to stand next to me so I can hold on to him.
We walk up the stairs and I try to make the bed, Kayne trailing behind me as he does when he knows I am ill. I am abl to stand without being dizzy! except today my hands hand decided that grasping is not going to happen. I finally manage to flop and maneuver the bed into some semblance of being "made"
By now my arms are on FIRE, I am nauseous, and dizzy.
I lie back on the bed to catch my breath and the dog stands over my face and begins to whine.
Sh*t they need food.
I manage to dump water into bowls and food into trays only spilling when an over eager cat head butts the scoop out of my hand sending an arc of dog food spilling onto the floor.
Again, Kayne knows me so he and Dodger dutifully clean dog kibble off the floor. Yes, I am a mean horrible mommy today.
I finally sit down in my chair and take note of the rest of my body:
Head: dull ache but I can be upright
Hands: aching and shakey
Shoulders, chest, ribs, arms, back, hips, thighs, calves, feet: FIRE, burning electrical non stop FIRE.
I text hubby to please bring home bread and black tea bags so I can start making iced tea (spring fave in this house) it comes out " plwas brung hyme brad an blwk te" I stare at it, decide he can decipher at will and press send.
I have not managed to clean cat boxes, or clean, or sort laundry, or do anything beyond basic level.
THAT is a day without spoons brought to you by Syringomyelia. It happens once a week normally but sometimes up to 5-6 times a week.
So next time you make the joke "You are lame, you don't do anything!" remember you are not far off, but I did do something, I got up and told you to shove it.